Once Upon A Gene
Sobre este podcast
Descripción del podcast
As a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but that I had lost sight of for a time - I am not alone. And neither are you. These are the stories of my family, and of families like ours. These are the stories of how we have persevered, cried, bonded, and grown. These are the stories of children who have been told that they cannot, and that have proved the world wrong.
Autor: Effie Parks
Duración Total:
160 hr 13 min
Todos los episodios
Effisode - Caregiver Personal Trainer Wanted
01 Dic, 2020Intro music by Scott Holmes
Duración: 7 minTurkey Soup for the Soul
26 Nov, 2020The Once Upon a Gene Merch Shop is open for pre-orders through December 6th. Check out the new products added to the shop before it’s too late! Based on the Chicken Soup for the Soul books, filled with feel-good stories …
Duración: 41 minEffisode - Out with the Ick
17 Nov, 2020Intro music by Scott Holmes
Duración: 5 minEffisode - Friendship, Inclusion, and Tough Conversations
03 Nov, 2020Intro music by Scott Holmes
Duración: 8 minLiving With Chronic Pain - International Pain Foundation President Barby Ingle
22 Oct, 2020ONCE UPON A GENE - EPISODE 053 Living with Chronic Pain - International Pain Foundation President Barby Ingle Barby Ingle is a fierce advocate, the President of the International Pain Foundation, a chronic pain educator and advocate, motivational speaker, Amazon …
Duración: 38 minEffisode - Making Friends and Talking About Differences
20 Oct, 2020Music provided by Scott Holmes
Duración: 6 minEffisode - Merch, Napa Center, and Beach Adventures
06 Oct, 2020Into music by Scott Holmes
Duración: 6 minReflecting on 50 Episodes with Effie and Casey
01 Oct, 2020ONCE UPON A GENE - EPISODE 050 Reflecting on 50 Episodes with Effie and Casey It's the 50th episode of the Once Upon a Gene podcast and Casey and Effie reflect on their journey, past guests, experiences and the stories …
Duración: 18 minThanatophoric Skeletal Dysplasia with Ashequka Lacey
24 Sep, 2020Thanatophoric Skeletal Dysplasia with Ashequka Lacey Ashequka Lacey is a fierce mama bear to Jakobi who was born with thanatophoric skeletal dysplasia which results from a mutation in the FGFR3 gene. Thanatophoric dwarfism is a severe skeletal disorder, but Jakobi …
Duración: 35 minFake It Til You Make It - Public Speaking, Road Trips and Intensive Therapy
22 Sep, 2020Intro music provided by Scott Holmes
Duración: 4 min
