Episodios sobre "Patient Advocacy"
7 episodios sobre este tema
Breaking the Silence: Growing Up with Sickle Cell, Facing Pain, and Finding Strength Through Advocacy with James Griffin
In this powerful episode of Once Upon a Gene, I sit down with James Griffin, author of Breaking Silence: Living With Sickle Cell Anemia. Diagnosed …
Relay Navigating the Healthcare System: A Real Life Case Study from a Patient Perspective & What We Can Learn
Originally aired Jan 25th 2022; Have you ever had the same recurring healthcare issue that you just couldn’t find answers to? That’s what happened to …
Eight Years of Searching: A Determined Family’s Quest to Cure an Ultra-Rare CLCN6 Mutation with Kristin & Paul Purdy
Links & Resources: Follow Their Journey on Social Media Facebook: Paxtons Pioneers Instagram: Paxtons_Pioneers KCAL News Story Watch the in-depth feature on their family’s advocacy …
Effisode - The Ultimate Rare Disease Resource Guide
Intro Music: Title: Storybook Author: Scott Holmes https://freemusicarchive.org/music/Scott_Holmes/inspiring-background-music Source: Free Music Archive https://freemusicarchive.org/music/Scott_Holmes/inspiring-background-music Licence: CC BY-NC https://creativecommons.org/licenses/by-nc/4.0/
Effisode - Rare Disease Day Events
Intro music by Scott Holmes
Being Brave, Curious and Motivated to Help Make a Difference with DLG4 Research Mama Payal Patel
ONCE UPON A GENE - EPISODE 168 Being Brave, Curious and Motivated to Help Make a Difference with DLG4 Research Mama Payal Patel I met …
Care Team Prescription - The Importance of Clinical Pharmacists with Chase Palmer
ONCE UPON A GENE - EPISODE 167 Care Team Prescription - The Importance of Clinical Pharmacists with Chase Palmer Chase Palmer is a pharmacist on …