Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival

ONCE UPON A GENE - EPISODE 028 Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival Bo Bigelow is the co-founder of Disorder: The Rare Disease Film Festival. He's joining today to talk about life in quarantine and his beautiful daughter Tess, who inspired him to produce a podcast, Stronger Everyday.  LINKS AND RESOURCES MENTIONED Disorder: The Rare Disease Film Festival https://www.rarediseasefilmfestival.com/ Episode 15: Films and Fatherhood with Daniel DeFabio https://effieparks.com/podcast/008-tanjs-akayy-jr78y-ja2e8-zanza-njkxy Stronger Everyday Podcast http://www.portlandrootsmedia.com/strongerpodcast Discovering new diseases with the internet: How to find a matching patient http://matt.might.net/articles/rare-disease-internet-matchmaking/ Foundation for USP7 Related Diseases https://www.usp7.org/ TUNE INTO THE ONCE UPON A GENE PODCAST Spotify https://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7 Apple Podcasts https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347 Stitcher https://www.stitcher.com/podcast/once-upon-a-gene Overcast https://overcast.fm/itunes1485249347/once-upon-a-gene CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast

Fecha de Publicación: 30 de abril de 2020

Duración: 36 min