Founder of LakiKid - Sensory Tools for Home and Classroom with Jason Hsieh
Once Upon A Gene
Founder of LakiKid: Sensory Tools for Home and Classroom with Jason Hsieh NORD, the National Organization for Rare Diseases invited me to be a speaker at the 2020 Living Rare, Living Stronger Patient and Family Forum on a breakout panel for caregivers. I'm going to be talking about stress reduction and emotional well being as a caregiver and I'd love for you to join virtually July 18th-19th, 2020. Today I'm talking to Jason Hsieh, a local father whose son was diagnosed with autism and ADHD. There were limited resources and therapy opportunities in Japan at the time of the diagnosis, so his family moved to Seattle to get the help they needed for their son. He struggled to find affordable, quality products to help with his son's sleep, anxiety and sensory challenges so he created his own brand instead. LakiKid is a product design company and also a community of families helping each other through patient support groups and live Facebook seminars. EPISODE HIGHLIGHTS How did your story begin in Japan? Did you feel isolated and feel a need to connect with others in your community? Can you tell us about your podcast and videocast? Can you tell us about your company LakiKid? Did you have issues around the school setting that you had to figure out for your son or which inspired any specific piece of your advocacy for making schools more inclusive? What advice do you have for parents in the beginning of their journey? LINKS AND RESOURCES MENTIONED NORD Living Rare, Living Stronger 2020 Registration https://rarediseases.org/living-rare-forum/ LakiKid https://lakikid.com/ Autism Parent Support Group https://lakikid.com/pages/autism-parent-support-group Sensory Fitness Live with Matt Sloan https://lakikid.com/pages/sensory-fitness-live Ask An Autism Mom https://lakikid.com/pages/ask-an-autism-mom LakiKid FREE Printable Social Story https://lakikid.com/pages/parents-survival-guide-to-coronavirus-covid-19#ebook KultureCity https://www.kulturecity.org/ Once Upon a Gene - Ep 019 - Neena Nizar and the Jansen's Foundation https://effieparks.com/podcast/008-tanjs-akayy-jr78y-ja2e8-zanza-njkxy-83esr-z2wkz-kx2a4-3zgjf TUNE INTO THE ONCE UPON A GENE PODCAST Spotify Apple Podcasts Stitcher Overcast CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast/?hl=en Built Ford Tough Facebook Group https://www.facebook.com/groups/1877643259173346/
Fecha de Publicación: 2 de julio de 2020
Duración: 28 min
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