Beginners Guide to Rare Disease - Wisdom from Others Who Have Been There
Podcast: Once Upon A Gene
Autor:Effie Parks
Análisis del Episodio
Resumen
Parents share their journeys, challenges, and advice regarding raising children with genetic disorders, emphasizing community support and the importance of a positive mindset.
Escuchar Episodio
Descripción del Episodio
A collection of voicemails from rare disease parents who relate to you situation.
Episodios Relacionados
-
Finding Joy in the Journey: A Guide for Parents of Medically Complex Kids with Amber Pierson & Chelsea Kuhn junio 5, 2025
-
From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency mayo 15, 2025
-
GeneDx Launches Cerebral Palsy Genetic Testing Pillar & Discover Snapshot: For Deeper Insights and to Help You Grow Your Patient Community – with Gay Grossman mayo 1, 2025
-
Empowered Kids - Painless Labs :O'Ryan Health’s At‑Home Blood‑Draw Revolution with Tim Coleman abril 18, 2025
-
Navigating the Complexities of Grief: How One Mother’s Grief Birthed a Supportive Community with, Heather Straughter. marzo 27, 2025